Sir Mike Penning led a debate in the House of Commons yesterday and called for urgent action in the case of severely epileptic children who are still not getting access to cannabis-based medication on the NHS despite the law being changed six months ago.
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Orkambi campaign
16 May 2019
The Prime Minister, Theresa May, a year ago today, said she wanted a “speedy resolution”* in the ongoing negotiations between NHS England, NICE and drug manufacturer Vertex so that cystic fibrosis patients could have access to Orkambi** and Symkevi***. Yet, since then, no resolution has been agreed.